Today is a wild and rough day for me. I thought things would definitely start looking up today, but it’s still the same. There are brief moments of wellness and hope that the worst is behind us, but then the waves of nausea blow her over and that is causing her back pain too. Thinking distraction and fresh air would help her, we took a wheelchair stroll around the hospital garden for about an hour. It didn’t do the trick. Ellis was sighing, deep breathing, and moaning in pain and eventually she wanted to return to the room.
I’ve been holding up fairly well. But I just had a moment of pent-up tears. The worst thing for me is seeing her in pain. It’s like a part of my body hurts for her too. Then, seeing Elliot at night time visits breaks my heart too. He sent us a picture of Dart saying that he’s waiting for us back home too. When I walked Chris and Elliot to the front of the hospital last night to say “good bye,” Elliot said that this was a “test of his tears” moment. Poor kid is suffering too even though he tries to put on a brave face. Poor Chris, holding down the fort and making sure everyone has what they need.
It’s a rough one this time! But I’m trying to praise God in the storm, because who else can I turn to for strength and peace? I can’t give it to myself for that would be short-lived and hopelessly contrived. God has turned things around for us in the past and I believe He’ll do it again. Our favorite and most memorable stories to tell at home stem from hospital visits. There is purpose in the pain.
Thankfully, both my mom and mil are recovering well from their surgeries. Now, if we can get this little lady to get well soon.
p.s. I hear helicopters landing about 2-4 times a day, which means patients are being flown into the hospital for treatment. Different reality around here. Dear Jesus, be with those patients and their families. I can’t imagine what they’re going through.
Also, it brings me great encouragement to come here and post what’s on my mind and am ultra thankful for the kind comments, thoughts, and prayers. Although I have moments of doubt and fear, I don’t feel sorry for myself. I feel it a great privilege and blessing to be able to care for my child in whatever capacity possible and know that God is growing me in the process). Thank you everyone!!!
12 responses to “God in the storm at the hospital for Ellis”
We will all keep you in our prayers Esther. You are a strong family and your faith will prevail in this medical ordeal, just like the others. Elliot is so mature for his age, a real trooper and I am sure it was heartbreaking to hear him say about parting that it was a “test of his tears”. Take care.
Thank you, Linda. I know that God is in this storm, just like He’s been in all the others. But it doesn’t get easy each time it happens. New challenges. Ellis got so many IV pokes and blood tests that they’re running out of veins to poke. The lab technician just poked the side of her hand for blood work. Yikes! Chris was at bedside so I didn’t have to be there this time.
Elliot is mature for his age. It comes with the territory of having a sister with a heart condition. Elliot just gave both me and Chris a soothing rub on our backs. Sometimes, he surprises me with his empathy.
Poor Ellis is still in lots of discomfort. Trying to find a better medication. Consulting with the doctors and nurses.
Ugh!!!
I feel sorry for all of you Esther … it’s tough seeing your baby in a hospital setting and even though she turned double digits this year, she is still your baby. Elliot is a young man to be proud of – his empathy and love for his whole family is admirable … you and I are the same, having no siblings perhaps missed out on a lot I think, but yes, it is in part due to having a sister with a heart condition. I hope the discomfort has lessened … do the doctors know what triggered this particular bout of vomiting episodes?
There has to be an end in sight. You’ve all faced this so bravely, but I don’t suppose there’s a lot of choice. You stay strong for each other. God bless 🤗🩷🩷🩷🩷
I am looking forward to that “end in sight” with welcome arms!! My faith is getting challenged left and right, whether I like it or not. lol
This is so painful even to read. Is the cause of her difficulties understood by the medical staff, or are they still trying to find the right treatment? Recurring symptoms of any disease are especially difficult to deal with, simply because of the tendency of patients and families to bounce between hope, relief, and despair. It certainly is true that something like this affects the whole family; it’s good that your ‘elders’ are recovering, at least.
It’s been a rough time, and you expressed it perfectly: “bounce between hope, relief, and despair.” All the feelings we’re feeling multiple times throughout the day.
Diagnosis is cyclic vomiting but I’m wondering if there is another issue here. This is the first time the episode has lasted so long and recovery slow coming. To add to that is helping her heart stay healthy in the midst of all this. I pray God will redeem lost time and help us grow stronger as a family. I wish it didn’t have to be through this however.
Yes, so relieved the ‘elders’ are recovering. One of them will start chemo soon. We’ve been hit with a triple whammy in a short period of time.
Prayers and love to you Ellis and your beautiful family.
Thank you, Cindy!! Appreciate your thoughtfulness and prayers.
We will keep you in our prayers Esther. You are a strong & your family your faith will prevail in this medical ordeal, just like the others. Elliot is so mature for his age, a real trooper Prayers and love to you Ellis and your beautiful family. You stay strong for each other. God blessing 🙏🪔♥️♥️♥️!
Sorry for I late read this post written comment. I missed these pot.
Certainly, we are praying for your whole family.
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Thank you!! We were sustained and uplifted by everyone’s prayers and encouragements. So glad to have this community and our church friends.