Sitting on the couch hawk eyeing Ellis. Morning was fine until she complained of a headache. Told her to drink some water. She did. Didn’t make much of her complaint. Cuddles with me on the couch during online church service and she gives me that look. It’s the I’m going […]
Every time. When I have an upcoming day slotted with various specialists’ appointments for Ellis, sleeping is impossible. It’s a 6 months check up that we have done for years that I can’t get used to going. I’ll take a long nap later.
Three years ago this month, we reached an incredible health milestone for Ellis. She finally underwent the 3rd phase of her heart surgeries. This was the goal to reach, meaning that she would’ve survived the first 2 surgeries and was doing well enough to undergo the 3rd one. She’d finally […]
Seven years ago tonight, I arrived at the hospital to get induced for labor at 36 weeks. It was a fearful night full of unknowns and insecurity. The birth plan was for the baby to be born the next afternoon, so she could be taken to the NICU for care […]
I don’t know who’s more anxious: me or Ellis. It’s a super early appointment that lasts hours seeing different specialists. And why I’m still not sleeping is just nuts. Brings back awful memories for our family. Condition has stabilized so much but it triggers a bunch of stuff and my […]