Thankful for a great year since Ellis’ heart surgery on Sept. 25, 17

One year ago today, Ellis underwent her third heart surgery. Even before her birth, doctors warned us of the various medical and lifestyle challenges we would face in the first few years of her life. They weren't lying. It. Was. Tough. We operated on survival mode and were content with just "getting by." Getting to … Continue reading Thankful for a great year since Ellis’ heart surgery on Sept. 25, 17

It’s inevitable. I get insomnia when I need to sleep.

It's funky, erratic sleep the night before any heart-related doctor's appointments for Ellis.  I can't pinpoint one worry, but a general sense of fear overcomes me. Other concerns that prevent continuous sleep: I'll oversleep; I'll be stuck in bay area traffic and miss the appointment entirely; I'll hear upsetting news; I'll need to be extra … Continue reading It’s inevitable. I get insomnia when I need to sleep.