Category: HLHS
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Yesterday afternoon, when Ellis, wearing her purple headphones, bounced up and down with delight in the dining table chair telling Elliot some inane thing and Elliot almost fell out of his chair, I almost cried. How do I get to be a part of this joy? That little body moving so freely and happily is…
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We all had an emotional week going in with fear of what would come next, should the heart pressure number be high and the heart dysfunction worsening. But miraculously, yesterday’s heart cath went well and Ellis’ heart pressure numbers looked great. It was a miraculous surprise, because we were expecting worse numbers than her last…
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