sing like wildflowers

My full and kooky life as a homeschooling mommy to 2 great kids, raising a child with HLHS (Hypolastic Left Heart Syndrome), coping with depression, following Jesus, and being much too camera happy.

Category: HLHS

  • Hope you all are having a wonderful Easter! I’m reminded today of the new life we have from Jesus Christ’ resurrection and the the gift of eternal gift He gives to believers. I am not worthy but He makes me worthy because of Him. My heart feels heavy today because my mom is still feeling…

  • Ellis had another blip on Wednesday that scared all of us: loss of appetite, full belly from constipation, and general unease. I readied myself for another ER trip. I told Chris and we just stared at each other…if our eyes could talk.  So much is discussed (disbelief, shock, exhaustion, resignation, humor in the sense of…

  • We’re still working on checking off Ellis’ long list of appointments! Yesterday was a long day of appointments where we’re shuffled from one room to another to meet different doctors. Thankfully, we are done for this month. Good news is that she’s stable and no changes in heart heart since last appointment. We like everything…

  • Wednesday was our heart clinic day at Lucile Packard Heart Center. The time we spend there varies each time, but the last couple of times took less than an hour, so I presumed this visit would be the same. It was not! The whole appointment took 4 hours with Ellis getting an echocardiogram, EKG, and…