sing like wildflowers
My full and kooky life as a homeschooling mommy to 2 great kids, raising a child with HLHS (Hypolastic Left Heart Syndrome), coping with depression, following Jesus, and being much too camera happy.
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Category: Hypoplastic Left Heart Syndrome (HLHS)
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Ellis had another blip on Wednesday that scared all of us: loss of appetite, full belly from constipation, and general unease. I readied myself for another ER trip. I told Chris and we just stared at each other…if our eyes could talk. So much is discussed (disbelief, shock, exhaustion, resignation, humor in the sense of…
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All the symptoms of cyclic vomiting like nausea, low appetite, and lethargy, but the vomiting hasn’t started yet. I hope getting some iv fluid will help.
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Sophie’s Place at Lucile Packard Children’s Hospital: This area is on the ground floor close to the garden doors and it is a library space and a separate broadcast room where patients can participate in games, shows, and listen to the talk show hosts through a specific TV channel at the Packard’s children’s hospital. A…
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When she gets a cyclic vomiting episode, they seem to come in clusters. We were in about a week and a half ago. It’s a pattern that seems to happen frequently in autumn. Learning from past experiences, I brought her in right after she started vomiting…dehydration makes it worse. Her medicines didn’t work. Hopefully this…
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The week has been good since we came home from the hospital last Thursday. We’ve been busy catching up on homework, recovering, and doing life. Then, last night Ellis had another vomiting episode. This one almost made me cry. It was midnight and it was heck of a clean up for me, and I almost…
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