Category: Hypoplastic Left Heart Syndrome (HLHS)
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This cyclic vomiting bout started on Monday around 11 a.m. and ended Wednesday around 6 p.m . It took experimenting with 4 anti nausea medications to abort the episode. I always stay alert to the ‘perk up’ moment, when she begins to look comfortable, starts to talk, asks for her phone, and is interested in…
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Thank you to everyone for your kindness thoughtfulness and encouragement! It gives us that extra boost of strength to keep carrying on even when it gets tough knowing that we have people cheering us on. Yesterday, we were in the ER from 2 p.m. until 10:30 p.m. when we finally got admitted and transferred upstairs…
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We’re still working on checking off Ellis’ long list of appointments! Yesterday was a long day of appointments where we’re shuffled from one room to another to meet different doctors. Thankfully, we are done for this month. Good news is that she’s stable and no changes in heart heart since last appointment. We like everything…
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