sing like wildflowers

My full and kooky life as a homeschooling mommy to 2 great kids, raising a child with HLHS (Hypolastic Left Heart Syndrome), coping with depression, following Jesus, and being much too camera happy.

Hi everyone, thank you for your supportive and encouraging comments and prayers!! They mean so much to me and I appreciate it from the bottom of my heart. When I feel down, I revisit them and feel seen and validated.

We’re still in the hospital, and there hasn’t been much improvement. Needless to say, it’s been frustrating. The nausea and retching are debilitating, and none of the medicines seem to provide long-term relief. When she naps, my heart swells with hope that she’s better and we can move on from this. But she wakes up with a frown and picks up the blue throw up bag that is next to her. Then, my heart swells with defeat that the nausea has returned. It’s a cycle of hope and defeat and repeat. When I hear that deep sigh and her little face looking at me with discomfort, I know that it’s still ongoing.

Gift from Santa, left on our bed by our nurse

With Christmas around the corner, I hope and wish we can be home by then. But I also realize we may still be here. If that’s the case, then so be it!! That’s my new mindset: I’m trying to change the state of my disappointed heart. I feel pressured to be home by Christmas, so kids can open their gifts together; also, I don’t want them to be disappointed that their Christmas was spent in the hospital. But if that does happen, what can I do?! I realize that there’s so much to be grateful (family, friends, blogging community, health, doctors, nurses, hospital, coffee, kind strangers, this comfortable hospital room, etc.) despite the circumstance. The gifts will still be there and we can open them on any day…why does it have to be only on that day?! We are unconventional in some ways, anyway. Let’s be weirder! Lol.

As you can see, I’m trying to lift my spirits and tell myself that it’s okay if this hospital stay is longer than initially anticipated. I wanted to go home by today, or at the latest tomorrow, but that doesn’t seem feasible.

But I’m learning a big lesson here! I’ve forgotten the true gift of Christmas, which is the gift of Jesus Christ and eternal salvation. That’s an immeasurable gift. The gift of Jesus’ presence can be opened anywhere, anytime.

So I will be changed and be intentional in re-realizing the true gift of Christmas; the birth of Jesus Christ! I wish I didn’t have to learn it in this circumstance, but lessons are learned more clearly and deeply in challenging circumstances.

Yesterday, December 21st
Santa dropping by to say “hello”!! He gave his signed copy of The Polar Express to each of the patients on this patient floor. When I asked Ellis if she wanted a picture with Santa, I got a side eye and a firm “no” head shake.
This is Santa’s day attire.
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19 responses to “Day 2 at the hospital and baby steps”

  1. Liz Gauffreau Avatar

    Thank you for the update, Esther. My heart goes out to you and Ellis.

    1. singlikewildflowers Avatar

      Thank you, Liz!!

      1. Liz Gauffreau Avatar

        You’re welcome, Esther!

  2. heavenstobetty Avatar

    It’s nice to see Santa at the hospital. 🎄❤️
    There are people who open gifts on New Year’s instead of 12/25. You’re not weird at all! As homeschoolers, we can change the dates to suit our needs. We do that sometimes if we need/want to. Just breathe and try to relax as best you can. 🤗🙏

  3. DEVANG UPADHYAYA Avatar

    Christmas magic will play

    Sending some positive vibes

    Best wishes

    1. singlikewildflowers Avatar

      Thank you for your reminder that Christmas magic was possible!!

  4. chaplincottage Avatar
    chaplincottage

    Dearest Ellis, Brave, Beautiful, Sweet Ellis…I’m so sorry you’re not feeling well and my prayers for a quick recovery are flooding your way…I know you will get through this and be home soon…I’m thinking of you aaalll the time and can’t wait to speak with you when you’re feeling a little stronger…you are so loved beautiful one…huge hugs💕💕💕 Pamela

  5. rajkkhoja Avatar
    rajkkhoja

    Iam so happy you share update. Little Elliot strong,brave & Smart, Elliot. Iam so sorry you aren’t feeling well,my prayers for early recovery,I know you will get through and Home soon.It’s nice to see Santa at the hospital. 🎄⛄🧑‍🎄
    You don’t left spirit. You are a strong & brave woman. You think positive always God with you. I will pray to God all is well my dearest friend, Eshter 🙋

    1. singlikewildflowers Avatar

      Thank you, Raj!! We were supported by so much prayers and well wishes. We are truly blessed.

      1. rajkkhoja Avatar
        rajkkhoja

        Most welcome, Eshter!

      2. rajkkhoja Avatar
        rajkkhoja

        Mee too 😂

  6. Linda Schaub Avatar

    Take it one day at a time Ellis and Esther, but tell the docs you’d like to be home to leave cookies for Santa and carrots for the reindeer.

    1. singlikewildflowers Avatar

      Doctors knew we wanted to be home for Christmas!! But they couldn’t give us false hope, so they kept the possibility open but not completely sure too. Ellis was in tears hearing their ambivalence and when she was still feeling the nausea, they mentioned discharge on the 26th, and she just broke down hearing that.

      1. Linda Schaub Avatar

        I imagine it was just killing the doctors not to be able to make that promise to Ellis (and you of course) that you’d be home for Christmas.

  7. vkonstantinova76 Avatar
    vkonstantinova76

    ❤️

  8. cindy knoke Avatar

    I am so very sorry!

  9. Sherry Felix Avatar

    All my love

    1. singlikewildflowers Avatar

      Thank you, Sherry!!

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