sing like wildflowers

My full and kooky life as a homeschooling mommy to 2 great kids, raising a child with HLHS (Hypolastic Left Heart Syndrome), coping with depression, following Jesus, and being much too camera happy.

Yesterday afternoon, when Ellis, wearing her purple headphones, bounced up and down with delight in the dining table chair telling Elliot some inane thing and Elliot almost fell out of his chair, I almost cried. How do I get to be a part of this joy? That little body moving so freely and happily is such a contrast to her when she gets pale and sick.

In random moments,  I constantly study her face and make mental notes of her expressions and facial features. I’ve done this since she was a baby, because I was afraid of not seeing her enough, in case.

Always by my side. My shadow.

I’m so thankful to God for this miracle of being home together in the quiet and everyone doing their own thing. This peace is a gift, which comes in unexpected times and when we think we just can’t move forward emotionally and we are running on fumes. But thank the Lord we are out of survival mode and living life ready for winter break to start next week, celebrate Christmas, and look forward to the new year.

When I get into an emotional downward spiral like I did last Thursday, I have to remind myself how far we’ve come and how much we have grown through these ordeals. I wish growth came easier and not through challenges, but they are the impetus for us coming out stronger and more resilient when it’s all done and over.

I’ll probably get into my funk again as time goes on, but I am confident that I can crawl out of that dark space quick enough to not linger long in that hopeless state. I don’t it alone. God brings me the right people, words, and external support I need to navigate those storms, as well as the right depression medication to manage my depressive symptoms. I used to feel shame in taking medication but now I see it as improving my quality of life rather than suffering in shame.

This has been one of the toughest years, and I thought 2023 was the hardest with all of us catching COVID and 3 hospitalizations in one month for Ellis last November and December. This year, I felt the bottom was not too far off in October after multiple hospitalizations and tough conversations with the cardiologist of what advanced therapy will look like when heart failure becomes more apparent. My knees literally shook yet I had to walk into the room and tell Ellis that there was nothing to worry about. I couldn’t even believe myself.

But through the tumultuous storms getting battered left and right by life’s circumstances, we have managed to overcome and still find joy in the midst of it. It is all God. I just can’t explain it any other way. And God has given me this blogging platform to make friends from all over the world, with whom I would never have met in real life, and a supportive community, which I’m deeply grateful to be a part of. Thank you, everyone!

Playing around
Posted in , , , , , , , , , ,

12 responses to “Thanking God for the good and bad”

  1. Liz Gauffreau Avatar

    Thank you for sharing such upbeat news! I love the happy smiles!!

    1. singlikewildflowers Avatar

      Thank you for reading and your lovely comment! Always happy to hear from you.

      1. Liz Gauffreau Avatar

        You’re welcome! I’m always happy to visit you and your family.

      2. singlikewildflowers Avatar

        So happy you do! 💓

  2. vkonstantinova76 Avatar
    vkonstantinova76

    🤗❤️

  3. shoreacres Avatar

    Reading about your experiences reminded me of a couplet from William Blake’s poem “Auguries of Innocence”:

    “Joy & Woe are woven fine 

    A Clothing for the soul divine 

    Under every grief & pine

    Runs a joy with silken twine.”

    Sometimes it’s hard to discern the joys, but it’s comforting to know that they’re there!

  4. rajkkhoja Avatar
    rajkkhoja

    Wow what a great you shadow pic. Very nice & emotional sharing update your living life. Thanks God. God is great.

    And God has given you this blogging platform to made best friends from all over the world, & you made me best friend. Iam so happy with whom I would never have met in real life, and I support you.

  5. Linda Schaub Avatar

    I am glad positive vibes are all around as the holiday season descends in full force force around you and I hope it can stay that way. Fun pics of you and the kids … I think Ellis is trying to fashion a Mr. Grinch?

    1. singlikewildflowers Avatar

      We missed the holiday season last winter, so we are going all out this winter. She’s been healthy and doing well.
      Ellis is making a turtle from a crochet kit and she’s made all the parts to it, but she needs help sewing them on. On Monday our 4-H crochet leader will teach her to sew them on.

      1. Linda Schaub Avatar

        Yes, do make up for lost time from the tail end of 2023! Healthy is good and I hope Ellis’ health remains like it is now. Last crochet class in 2024 and voila a turtle!

      2. singlikewildflowers Avatar

        That crochet turtle Ellis did it all by herself. We didn’t make it to crochet since my tummy was all out of sorts. So Ellis still has the arms and turtle shell that she needs help sewing onto her doll It’ll have to wait till the new year.
        I’m so grateful that we are having a healthy Christmas. Last year this time we were in the hospital and got discharged Christmas evening. Whew…what a life. But we see new blessings everyday and stay grateful for time to be home together. Bear hugs…esther

      3. Linda Schaub Avatar

        The turtle will keep ’til the next year and yes, I know how grateful you are for everyone to be home together and healthy. What a year 2024 has been for your family and don’t forget your eye issue along the way. Bear hugs back at you!

Discover more from sing like wildflowers

Subscribe now to keep reading and get access to the full archive.

Continue reading